Month: June 2019

Posted on

2 Seconds of Bliss

It’s the fraction of a moment when you first wake up where things are full of potential. Look out a window, take a deep breath, yawn, stretch, sigh, maybe pray for a moment or simply be.

And then reality sweeps in. The crushing weight of … fear, loneliness, grief, hopelessness. Futility.

I remember a time when this wasn’t a challenge. When getting up in the morning just was. Work. Eat. Sleep. Repeat. And all was as it should be with the world. I never had cause to consider it would ever be another way.

When Lo came into the world it was evident that genetic anomalies were at play. And while it meant early intervention, visits to more “-ologists” than I knew existed and a future of therapies and support services, the most exhausting part was the evening when it was time for me to go to bed.

Going to sleep meant being one step closer to going through it all. Again. Another day of doctors, therapies, advocating, researching, plus the more joyful but tiring aspects of parenting – not to mention the fact that Lo is a second child so there was another child already running about needing to be cared for.

I began to dread the evening hours. That moment when the TV is turned off and everyone is ready for sleep. It wasn’t the lack of rest ahead or the emotional or financial cost that would cause the anxiety but the anticipation that for a moment, first thing when my eyes open, there would be moment of bliss. Of having forgotten. Of seeing the world as it once was and, for many, still is. It was knowing that the bliss would last for only a fraction of a moment before being squashed by reality while I watched.

Eventually we grew beyond this, Lo began to thrive. The critical issues taken care of, her limitations overcome and school life settled into. There came a time I never though would arrive – where I could actually forget she had a unique genetic condition. Now, 11 years in, we can go a long time without the name of the syndrome even coming to mind let alone be voiced.

Mornings became mornings. Evening was no longer torture waiting to happen. It’s amazing what you don’t notice is gone.

Until it comes back.

Posted on

Grief is not linear

There is no straight line from loss to what we’ll call recovery. I’d like to say “all my life I thought…” but truth is, I never even thought about grief, about loss, about what it means for everyday, what that loss does to the light, to time, to joy, to the very act of breathing, getting up in the morning, going to bed at night, how things look, feel, sound, taste.

While I have lost family members, it never occurred to me that grief as a journey isn’t a straight line. The direct loss wasn’t mine. My heart ached for the spouses left behind. Still aches for them. But it wasn’t until an entirely different circumstance introduced me to grief directly that I began to see it for what it is.

Grief stripped me of all that I thought I knew. It ripped me to the core of my being. It flipped upside down everything I thought I knew about life and loss, living and dying.

In my current journey of loss, the most recent lesson is that it is not linear. One doesn’t simply and gradually “get over it” like walking up a gradual incline. There are days when getting out of bed is an achievement. When emptying the dishwasher counts as a productive day. And while I can look back on the months between impact and today and see how things have gotten less painful, how things have changed and, for lack of better words, gotten better, I then had an experience that put me so far back on the path to healed that I’m not sure the end exists. The proverbial “two steps forward three steps back”.

In this particular case, words spoken in support and hope created turmoil. They were intended to heal, to soften a moment of history yet had the unintended result of ripping open a carefully stitched wound. To be clear, I do not hold the source responsible for the outcome. My reaction is on me alone and I hold no malice, anger or disappointment.

The results though tell the state of my heart and stage of my journey. The imagery that comes to mind is that I had just climbed out of a deep chasm. Rocky walls, damp, rough, the only way out going up, through the pain. And, standing on the edge, finally out of the depths and face turned to the light and warmth, to then have words blindside me back over the edge back into the hole like a wrecking ball into the side of a building.

My choice, once again, to remain in the pit or work, inch by inch, memory by memory, hurt by hurt back up the edge. Jesus on belay, me searching for toe holds through the threat of tears.

Grief doesn’t travel a straight line. It weaves and ducks, it leads then follows, strangles then caresses. It sneaks up like a storm on a sunny day. The tiniest scent, a flash of memory, a habitual motion, phrase or task brings a sweeping wave wiping out all forward progress, sets back days, weeks, miles, back to the bottom of the pit.